Shiloh
I wake up, mums beside me beaming at me telling me she loves me kissing my face all over. She tells me that I did a good job. I have no idea why she is saying it other than her just loving me.
Mum
I wake up at around 7am after a night of checking on our little daughter making sure her blood sugar levels are ok. She is still asleep after having no idea that we gave her the needle in changing her insulin pump site over and removing the old one. I know that if we do it when she wakes then we will have arguments and tears that breaks my heart every time. My husband has gone to work again and I know it is now my responsibility to make sure she is ok for the day.
She is starting to stir. I bring her in close as I love her to the moon and back and I want to make sure nothing hurts her. With a gentle kiss to the forehead she wakes and I congratulate her telling her that she is great and has done a good job. Her levels have been good all night and she has woken up safe and happy. This starts my day with the first part of releif.
Shiloh
I am up and today I want to play on the trampoline. I run into Lucy's room cause she has to play with me. I wake her up and tell her. She says "no I don't want to" and I reply by yelling "MUM, DAD LUCY WON"T PLAY WITH ME!" mum and dad will fix this. she will play with me and play with me now. After a quick response Lucy is now on her way down to the trampoline.
Jump, Jump, Jump, hit Lucy and jump on her.... Oh no Indy wants to jump with us and she is now running all over the place. She is a cute dog but I want to jump. BEEP BEEP BEEP..... "MUM MY PUMP IS BEEPING" "MUM MY PUMP IS BEEPING" Jump, jump, jump oh no I mum has come down and I have to stop as she wants to check my pump. "Mum What am I?" Mum tells me that I am low and I need some sugar. I don't want to stop but mum came prepared and gives me my juice. I quickly drink all my juice and back to playing.
Mum
Ok time to clean up a little... wait I can't see her is she ok? Am I able to get to her if there is a problem? Ok I can see her she is jumping and playing with her sisters. Now that she is doing extra activity then she may go low so I will have to be on my guard waiting just to see what happens. She was in the 8's before going to play and she has eaten breakfast so she should be ok. Now on with the cleaning..... "MUM MY PUMP IS BEEPING... MUM MY PUMP IS BEEPING" I hear it and before I know it I reach for the handy fruit juice. I walk out to the backyard and still see that she is jumping and when she sees me she stops screaming that the pump is going off. I have either misjudged the breakfast carb count and she is rising too high or the activity has dropped her and the Smart Guard is in action and predicting a low. I get to the trampoline and she comes over holding out her pump while still talking to her sisters and eager to jump back in. As feared the beeps are from a low so I give her the juice and she quickly slams it down.
She is so happy and eager and has no idea other than her pump beeped and she has to tell me when that happens. She is a smart girl and she knows that something is wrong but just not what it truly means.
Shiloh
Oh I am hungry I think I will get some food. "MUM i'm hungry can I have food?"
Mum
"Food you only just ate" oh wait she just had a low she is on the way back up and her body is striving to replenish the lack of energy that was just burnt. I will give her some ham and strawberries. That way she will get some energy and some free foods. I hope she won't eat me out of house and home.
Shiloh
Yum yum bacon and strawberries.... Mum can I watch Tinkerbell?
The day goes on and the things that everyone needs to do while still having a permanent part of your brain focusing on T1D. Being 4 Y/O Shiloh understands some words and understands that to eat something she needs us to press some buttons on her pump but before she eats. She really doesn't understand why and what would happen if we didn't focus on it. She has no idea what carbs are and what amount of them are in each of the foods. I suppose as she grows we want to make sure she is a little girl first with T1D rather than focusing her whole life on T1D and trying to live life around it.
As she grows the leanings and responsibility will be transferred from us to her which will be difficult however it will have to happen but unlike me I want to ensure she doesn't grow up too quickly. This disease has the ability to take your childhood away if your not careful.
