Wednesday 20 November 2013

Hard to believe but my world changes again!

This world is a strange place. There are beliefs in this world that say before you come into this world your spirit chooses the lessons you need to learn and set out your life in front of you. A preset life if you like..... Now if that is the case, and I am not saying either way, then I really must have had some seriously boring past life's or I am just a sadistic bastard. After numerous tests in the past I was starting to believe that the results of the drooped left eye, tremors in the right arm, dizziness, overall body tiredness and, the small one, scaring on the brain was just as the specialist said just caused by stress and it would just be a case of managing that..... Today changed that belief.

Waking up this morning I noticed that my left eye was blurry. I didn't think to much of it and in fact headed off to my quarterly diabetes review which should only take an hour or so. I was also looking forward to getting my HbA1C results to see if it had changed after I have been focusing on my daughters T1 a little over mine. On a great note my HbA1C is once again 6.1.... My daughter and I match perfectly as hers was also 6.1.

After getting to the appointment I thought I better mention that I wanted them to check my eyes just in case it was something and they jumped to it. They seemed more stressed than I initially was but now I see why. They took some photo's of the veins and arteries which all looked good... No T1 problems. I then saw the endocrinologist and once again they said from a T1 perspective everything was great no signs of celiac, no high blood pressure, no kidney problems and a great HbA1C. But then she asked my about my eye. She informed me that we needed to be more safe than sorry and after reading the report from a recent MRI she said she strongly suggest sending me over to the eye causality to have the checks done. She also informed me that there were suggestions agin from the report that MS was a likely cause. I finished up my appointment and got directions to the eye department.

Upon getting there I take a seat in the over populated waiting room and wait my turn. After around 20 mins I get called into the nurses office to have an initial check and to have the drops that cause the eyes to dilate dropped into place. I suppose it was the start of a problem when before the nurse put the drops in she needed to have the doctor come in to see if it was safe to do so. The doctor came in and took a look and asked if this blurred vision only started this morning to which I replied "yes and it hasn't ever happened before". She took a quick look and informed the nurse to put the drops in and send me to get a scan of the eyes.

The scan took place and the operator said everything looked fine which was great to hear however it still left questions as to what was the cause of my problems. After another 1.5 hours waiting I saw the eye specialist and put my eyes through the wringer. More drops in to make them numb to test the pressure. Yes they had a device to push on my eye ball to see how we'll it rebounded. For a person who doesn't like things to do with the eye this was horrifying. I couldn't imagine putting in contact lenses. The results of the pressure test was that both eyes were a little high. I was then made to look up, down, left, right and everywhere in between while the doctors scoured every part of my eyes. After the review theory thing still looked fine however it was still blurry and then she held up a red pen and asked me to close my left eye and if the colour I saw in the right eye was 10 out of 10 when I changed and looked through my left I would have to rate the colour I saw. I swapped over and I could only rate the colour a 3. This scared the hell out of me. To not be able to see properly and now not to see the same colours, this got my heart pounding and still does.

The doctor informed me that the good news is the eye itself looks good however she thought another MRI was necessary. She didn't tell me what she thought it was but said she had to speak to the registrar to make sure what she has looked at is correct. Confirmation if you like.

I went down to another waiting room and 15 minutes later I was called again and another quick review was done. Afterwards the registrar informed me that the diagnosis for my eye was optic neuritis. Along with the results of the initial MRI it looks like the beginning of MS. Another auto immune disease. If one isn't enough now another one that has treatment but also some medications that conflict with my insulin regime.

More tests to come and a big change ahead and I am hoping this will be the last major change for a long time. The fear is high for me and my family but we will progress and I will win.

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